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Surveillance and Reporting on End of Life Care for Persons Dying of Chronic Disease

Project Lead: Grace Johnston ()

Objectives: Develop and use population based surveillance methods to report on end of life care provision. Transfer the knowledge gained and exchange insights with researchers, clinicians and managers in district palliative care programs, provincial chronic disease programs and other strategic decision makers.

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• 3x3 NELS Project:
  Chronic Disease and Palliative Care Program Data Linkage and Analysis
  

Reports [PDFs]

Lynn Lethbridge, 2010
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Alison Zwaagstra, 2008-10
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•• Parkinson's Disease Mortality in Nova Scotia, 1998 to 2005•

Junaid Kapra, 2008
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Presentations

Lynn Lethbridge, 2011 - Canadian Association for Health Services and Policy Research (CAHSPR) Annual Conference
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Alison Zwaagstra, 2008 - ICE Work in Progress Session
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Posters [PDFs]

Grace Johnston, Lynn Lethbridge, Judith Fisher, et al., 2011
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Grace Johnston, Alison Zwaagstra, David Henderson, et al., 2010
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Alison Zwaagstra, Grace Johnston and Ahmad A. Tarakji, 2010
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Grace Johnston, Jun Gao, Dorianne Rheaume, et al., 2008
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Grace Johnston, Fred Burge, Alison Zwaagstra, et al., 2008
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Publications

Lethbridge, L., Johnston, G., Turnbull, G. (2013) . Progress in Palliative Care, 21(3): 140-5(6).    *Free article

Corkum, M., Urquhart, R., Kendell, C., Burge, F., Porter, G., Johnston, G. (2012) . Cancer Causes and Control, 23(2): 213-20.    *Free article

Gao, J., Johnston, G.M., Lavergne, M.R., McIntyre, P. (2011) . Journal of Palliative Care, 27(2): 98-106.
*Free article

Lavergne, M.R., Johnston, G.M., Gao, J., Dummer, T.J.B., Rheaume, D.E. (2011) . Palliative Medicine, 25(2): 101-10.    *Free article

Lavergne, R., Johnston, G.M., Gao, J., Dumont, S., Burge, F. (2011) . Journal of Pain and Symptom Management, 41(4): 779-87.    *Free article

Grunfeld, E., Urquhart, R., Mykhalovskiy, E., Folkes, A., Johnston, G., Burge, F., Earle, C., & Dent, S. (2008) . Cancer, 112(10): 2301-8.
*Free article.

Johnston, G. (2008). Palliative and end of life care for persons with advanced colorectal cancer: Basics upon which to build. Journal of Palliative Care, 24(3), 221.

Johnston, G., Burge, F., Kuziemsky, C., McIntyre, P., Kapra, J., & Gao, J. (2008) . Palliative Medicine, 22(4): 554.

Johnston, G., Lawson, B., Gao, J., Burge, F., McIntyre, P., & Grunfeld, E. (2008) . Palliative Medicine, 22(4): 418.

Grunfeld, E., Johnston, G., Mykhalovskiy, E., Cicchelli, L., McIntyre, P., Burge, F., et al. (2006) Journal of Palliative Care, 22(3): 200.

Grunfeld, E., Lethbridge, L., Dewar, R., Johnston, G., Lawson, B., Burge, F., et al. (2006) Journal of Palliative Care, 22(3): 243.

Grunfeld, E., Lethbridge, L., Dewar, R., Lawson, B., Paszat, L. F., Johnston, G., et al. (2006) . Palliative Medicine, 20(8): 769-77.    *Free article

Johnston, G., Gao, J., Dewar, R., McIntyre, P., Orychock, D., Maddalena, V., et al. (2006) Journal of Palliative Care, 22(3): 244.

Johnston, G., Grunfeld, E., McIntyre, P., Maddalena, V., Rocker, G., Asada, Y., et al. (2006) Journal of Palliative Care, 22(3): 244.